"The Most Dramatic Case"

Today we heard something we never imagined we would hear: "Your son has the most dramatic case of tics I have ever seen in my career." This came from the chief of neurology at Children's, Dr. Ng. 

Tyler's tics are so extreme that he has literally only slept one hour in the last 36, even with meds intended to help him sleep. The noises (they can hardly be called "burps" any more) and jerking are constant. They hardly ever stop. Dr. Ng even asked our permission to film him because his case is so severe. 

So here's the game plan. Dr. Ng still thinks Tyler has an extreme case of Tourette's. However, just to rule out any other possibilities, he is getting an MRI tomorrow. They are also starting him on an anti-seizure medication to try to stop the tics so he can hope to regain some sense of a normal life. The advantage of this particular medication is that they can rapidly increase the dosage as needed until it produces the desired effect without fear of harmful damage that other meds can cause when increased rapidly. This allows us to give him relief faster. The plan is to keep him in the hospital until he reaches a dose that drastically decreases or eliminates his tics. 

So now we wait. Wait for an MRI. Wait for meds to kick in. Wait for tics to stop. Wait for Tyler to sleep. Wait on God to do something AMAZING—which he always does! :)

We will keep you posted.